Monday, October 24, 2011

The ASD week ahead

This week is a big week in our household.

The Princess has an appointment with ASPECT for her Autism Spectrum Disorder Diagnosis, or not.

I am fully prepared for her to be given the diagnosis of Asperger's Syndrome, just like her brother Mr Magoo.

If she doesn't get a diagnosis at all......

Fair to say I will be devastated.

Lots of things point to her having Aspergers syndrome

She has an extremely high IQ in non verbal memory but it drops dramatically once verbal skills are needed.
At home she talks and talks and talks.
But when out people don't hear much at all and I am often asked if she talks at all.
Or if she becomes overwhelmed language stops or goes to a tiny whisper
If given a number of choices, she just falls apart.
If too much food is on her plate she becomes overwhelmed and just doesn't know where to start.
Most meals out she ends up sitting under the table.
There is an order the kids have to get in the car.
She has MAJOR sensory issues
We have days where she just lays on the floor and screams and says mumma mumma over and over again
She wakes up often before 4am. And if I don't get up with her she will SCREAM and not stop.
We watch her Santa Dora DVD just about everyday
She puts everything in her mouth and chews things up
We have to keep her finger nails short as she likes to scratch and pinch
On Saturday she screamed for over 1 1/2 hours because I forgot to take her a banana to eat after swimming.

And I could go on
You know what.
 All of the above is just a typical day for us

I don't want my child to have a label
But I do want to get her the help she needs
And for that to happen she needs that label


So this week is a big week for our family

Sarah xx

3 comments:

clare's craftroom said...

Sarah I wish you all the very best and much kindness to your little one x

SaraMG said...

Kate (Kate Says Stuff) wrote about it a few months back, just like you say you need that label so that your little loved one can get the help she needs.

Fingers crossed Sarah that you get that diagnosis. :)

MaidInAustralia said...

Fingers crossed for you. I understand about the need for a label, because it can open a lot of doors when it comes to getting assistance. Good luck.